Citazione non strutturata

Abelson J., Forest P.G., Eyles J., Smith P., Martin E., Gauvin F.P. (2003). Deliberations about deliberative methods: issues in the design and evaluation of public participation process. Social Science and Medicine, 57: 239-251.

https://doi.org/10.1016/S0277-9536(02)00343-X

10.1080/136455703200011961

Citazione non strutturata

Avritzer L. (2011). Introdução. A qualidade da democracia e a questão da efetividade da participação: mapeando o debate. In: Pires R., a cura di, Efetividade das instituições participativas no Brasil: estratégias de avaliação, Brasília: IPEA.

Citazione non strutturata

Baggott R., Forster R. (2008). Health consumer and patients’ organizations in Europe: towards a comparative analysis. Health Expectations, 11: 85-94.

https://doi.org/10.1111/j.1369-7625.2007.00472.x

Citazione non strutturata

Barnes M., Coelho V.S. (2009). Social participation in health in Brazil and England. Health Expect, 12 (3): 226-36.

https://doi.org/10.1111/j.1369-7625.2009.00563.x

10.1111/1467-9299.0035

Citazione non strutturata

Batista R., Moreira M. (2016). Relações entre representação e participação no Conselho Municipal de Saúde de Rio de Janeiro: segmento dos usuários, 2013-2014. Ciências & Saúde Coletiva, 21(5): 1409-20.

https://doi.org/10.1590/1413-81232015215.00352016

Citazione non strutturata

Beardshaw V. (1991). User representation in the NHS and the future of Community Health Councils. Draft Discussion Paper 1990/1991, King’s Fund Institute, London.

Citazione non strutturata

Bezzi C. (2011). Glossario della ricerca valutativa. Testo disponibile al sito: https://bezzicante.files.wordpress.com/2014/05/glossario-6.pdf (27/11/2021).

10.1590/0102-311X0008621

Citazione non strutturata

Blondiaux L., Sintomer Y. (2002). L’impératif délibératif. Politix, 15(57): 17-35.

https://doi.org/10.3406/polix.2002.1205

10.1080/14494035.2018.1511193

Citazione non strutturata

Boivin A., L’Espérance A., Gauvin F.P., Dumez V., Macaulay A.C., Lehoux P., Abelson J. (2018). Patient and public engagement in research and health system decision making: A systematic review of evaluation tools. Health Expectations; 21: 1075–1084.

https://doi.org/10.1111/hex.12804

10.1111/1468-0009.1206

Citazione non strutturata

Botes L., Van Rensberg, D. (2000). Community participation in development: nine plagues and twelve commandments. Community Development Journal, 35(1): 41-58.

https://doi.org/10.1093/cdj/35.1.41

Citazione non strutturata

Bovenkamp H.M., Trappenburg M.J., Grit K.J. (2009). Patient Participation in collective healthcare decision making: the Dutch model. Health Expectation; 13(1): 73-85.

https://doi.org/10.1111/j.1369-7625.2009.00567.x

Citazione non strutturata

Chambers S. (2018). The philosophic origins of deliberative ideals. In: Bächtiger A., Dryzeck J., Mansbridge J., Warren M.E., a cura di, The Oxford Handbook of Deliberative Democracy. Oxford: Ofxord University Press.

https://doi.org/10.1093/oxfordhb/9780198747369.013.1

Citazione non strutturata

Conklin A., Morris Z., Nolte E. (2012). What is the evidence base for public involvement in health-care policy? Results of a systematic scoping review. Health Expectations 18(2): 153-165.

https://doi.org/10.1111/hex.12038

Citazione non strutturata

Contandriopoulos D. (2004). Sociological perspective on public participation in health care. Social Science & Medicine, 58: 321-330.

https://doi.org/10.1016/S0277-9536(03)00164-3

Citazione non strutturata

Coulter A. (2013). Engaging Patients in Healthcare. New York: McGraw Hill Professional.

Citazione non strutturata

Crawford M.J., Rutter D., Manley C., Weaver T., Bhui K., Fulop N., Tyrer P. (2002). Systematic review of involving patients in the planning and development of health care. British Medical Journal, 325 30 november. -- Testo disponibile in pdf: https://www.bmj.com/content/bmj/325/7375/1263.full.pdf

https://doi.org/10.1136/bmj.325.7375.1263

Citazione non strutturata

Crouch C. (1999). La ampliación de la ciudadanía social y económica y la participación. In: García S., Steven, L., a cura di, Ciudadanía, justicia social, identidad y participación. Madrid: Siglo Veintiuno.

Citazione non strutturata

De Freitas C., Martin G. (2015). Inclusive public participation in health: Policy, practice and theoretical contributions to promote the involvement of marginalised groups in healthcare. Social Science & Medicine, 135: 31-39.

https://doi.org/10.1016/j.socscimed.2015.04.019

Citazione non strutturata

Elwood P., Longley M. (2010). My Health: Whose responsibility? A jury decides. Journal of Epidemiology and Community Health, 64(9): 761-64.

https://doi.org/10.1136/jech.2009.087767

Citazione non strutturata

Entwistle V. (2009). Public involvement in health service governance and development: questions of potential for influence. Health Expectations, 2009, 12: 1-3.

https://doi.org/10.1111/j.1369-7625.2009.00539.x

Citazione non strutturata

Font J., Blanco I. (2007). Procedural legitimacy and political trust: The case of citizen juries in Spain. European Journal of Political Research, 46: 557-589.

https://doi.org/10.1111/j.1475-6765.2007.00701.x

Citazione non strutturata

Frankish J. C, Kwan B., Ratner P., Warf Higgins J., Larsen C. (2002). Challenges of citizen participation in regional health authorities. Social Science and Medicine 2002, 54: 1471-80.

https://doi.org/10.1016/S0277-9536(01)00135-6

Citazione non strutturata

Fredriksson M., Tritter J. (2017). Disentangling patient and public involvement in healthcare decisions: why the difference matters. Sociology of Health & Illness, 39(1): 95-111

https://doi.org/10.1111/1467-9566.12483

Citazione non strutturata

Fung A. (2015). Putting the Public Back into Governance: The Challenges of Citizen Participation and Its Future. Public Administration Review, 75(4): 513-522.

https://doi.org/10.1111/puar.12361

Citazione non strutturata

Fung A., Wright E.O. (2001). Deepening Democracy: Innovations in Empowered Participatory Governance. Politics Society, 29: 5-41.

https://doi.org/10.1177/0032329201029001002

Citazione non strutturata

Giarelli G. (2006). Terzo settore e governance sanitaria comunitaria: tre modelli di partnership a confronto. Salute e società, 1: 68-87.

Citazione non strutturata

Giarelli G., Annandale E., Ruzza C. (2014). Introduction: The role of civil society in healthcare systems reforms. Social Science & Medicine, 123: 160-167.

https://doi.org/10.1016/j.socscimed.2014.10.046

Citazione non strutturata

Habermas J. (1992). Further reflections on the Public Sphere. In: Calhoun C., a cura di, Habermas and the Public Sphere. Cambridge: The MIT Press.

Citazione non strutturata

Hall A.E., Bryant J., Sanson-Fisher R.W., Fradgley E.A., Proietto A.M., Roos I. (2018). Consumer input into health care: Time for a new active and comprehensive model of consumer involvement. Health Expect., 21: 707–713.

https://doi.org/10.1111/hex.12665

10.1111/1467-9515.0008

Citazione non strutturata

Kashefi E., Mort M. (2004). Grounded citizens’ juries: a tool for health activism?, Health Expectations, 7: 290-302.

https://doi.org/10.1111/j.1369-7625.2004.00295.x

Citazione non strutturata

Kondilis B., Kiriaze I., Athanasoulia A., Falagas M. (2008). Mapping Health Literacy Research in the European Union: A Bibliometric Analysis. PLOS ONE, 3(6): 1-6.

https://doi.org/10.1371/journal.pone.0002519

Citazione non strutturata

Lander J, Langhof H, Dierks M.L. (2019). Involving patients and the public in medical and health care research studies: An exploratory survey on participant recruiting and representativeness from the perspective of study authors. PLOS ONE, 14(1): e0204187.

https://doi.org/10.1371/journal.pone.0204187

Citazione non strutturata

Lehoux P., Daudelin G., DemersPayette O., Boivin A. (2009). Fostering deliberations about health innovation: What do we want to know from publics?. Social Science & Medicine, 68: 2002-09.

https://doi.org/10.1016/j.socscimed.2009.03.017

Citazione non strutturata

Li K., Abelson J., Giacomini M., Contandriopoulos D. (2015). Conceptualizing the use of public involvement in health policy decision-making, Social Science & Medicine, 138:14-21.

https://doi.org/10.1016/j.socscimed.2015.05.023

10.1177/13558196970020020

10.1590/S0102-6445200700010000

Citazione non strutturata

Martin G. (2008). Representativeness, legitimacy and power in public involvement in health-service management. Social Science & Medicine, 67: 1757-65.

https://doi.org/10.1016/j.socscimed.2008.09.024

Citazione non strutturata

Martin G. (2008). Ordinary people only’: knowledge, representativeness, and the publics of public participation in healthcare. Sociology of Health & Illness, 30(1): 35-54.

https://doi.org/10.1111/j.1467-9566.2007.01027.x

Citazione non strutturata

Mitton C., Smith N., Peacock S., Evoy B., Abelson J. (2009). Public participation in health care priority setting: A scoping review. Health Policy, 91: 219-228.

https://doi.org/10.1016/j.healthpol.2009.01.005

Citazione non strutturata

Mockford C., Staniszewska S., Griffiths F., Herron-Marx S. (2012). The impact of patient and public involvement on UK NHS health care: a systematic review. Int. J. Qual. Health Care, 24: 28-38.

https://doi.org/10.1093/intqhc/mzr066

Citazione non strutturata

Montesanti S., Abelson J., Lavis J., Dunn J. (2016). Enabling the participation of marginalized populations: case studies from a health service organization in Ontario, Canada. Health Promot Int, 32(4): 636-649.

https://doi.org/10.1093/heapro/dav118

Citazione non strutturata

Morrison C., Dearden A., (2013). Beyond tokenistic participation: Using representational artefacts to enable meaningful public participation in health service. Health Policy, 112: 179-186.

https://doi.org/10.1016/j.healthpol.2013.05.008

Citazione non strutturata

Parkinson J., (2004). Hearing voices: negotiating representation claims in public deliberation. Br J Polit & Int Relations, 6(3): 370-388.

https://doi.org/10.1111/j.1467-856X.2004.00145.x

Citazione non strutturata

Pateman C. (1970). Participation and democratic theory. Cambridge: Cambridge University Press.

https://doi.org/10.1017/CBO9780511720444

10.1017/S1537592711004877

Citazione non strutturata

Pitkin H.F. (1967). The Concept of Representation. Berkeley: University of California Press.

https://doi.org/10.1525/9780520340503

Citazione non strutturata

Pizzo E., Doyle, C., Matthews R. Barlow J. (2014). Patient and Public Involvement: how much we spend and what are the benefit? Health Expectations, 18: 1918-1926.

https://doi.org/10.1111/hex.12204

Citazione non strutturata

Rojatz D., Forster R. (2017). Self-help organisations as patient representatives in health care and policy decision-making. Health Policy, 121(1): 1047-1052.

https://doi.org/10.1016/j.healthpol.2017.08.012

Citazione non strutturata

Santos B.S. (2005). Democratizing democracy: beyond the liberal democratic canon. London: Verso.

Citazione non strutturata

Serapioni M. (2002). Forme innovative di partecipazione dei cittaseradini alla valutazione di qualità: Citizens’ Juries e Comitati Consultivi Misti. In: Cipolla C., Giarelli G., Altieri L., a cura di, Valutare la qualità in sanità. Approcci, metodologie e strumenti. Milano: FrancoAngeli.

10.1590/1413-812320141912.0229201

Citazione non strutturata

Serapioni M. (2014b). Saúde, participação e abordagens deliberativas. Potencialidades e limites dos júris de cidadãos. Fórum Sociológico, 24: 95-103.

https://doi.org/10.4000/sociologico.1101

10.1590/S0102-311X200600110001

Citazione non strutturata

Smith, G., Mattew R. (2014). Defining Mini-public: Making Sense of Existing Conceptions. In: Grönlund K., Bächtiger A., Setälä M., a cura di, Deliberative mini-public. Involving Citizens in the Democratic Process. Colchester: European Consortium for Political Research.

Citazione non strutturata

Street J., Duszynski K., Krawczyk S., Braunack-Mayer A. (2014). The use of citizens’ juries in health policy decision-making: a systematic review. Social Science & Medicine, 109: 1-9.

https://doi.org/10.1016/j.socscimed.2014.03.005

Citazione non strutturata

Tambuyzer E., Pieters G., Van Audenhove C. (2014). Patient involvement in mental health care: one size does not fit all. Health Expect, 17(1): 138-50.

https://doi.org/10.1111/j.1369-7625.2011.00743.x

Citazione non strutturata

Thurston W., MacKean G., Vollman A., Casebber A., Weber M., Malof B., Bader J. (2005). Public participation in regional health policy: a theoretical framework. Health Policy, 73: 237-252.

https://doi.org/10.1016/j.healthpol.2004.11.013

Citazione non strutturata

Timotijevic L., Raats, M.M. (2007). Evaluation of two methods of deliberative participation of older people in food-policy development. Health Policy, 82: 302-319.

https://doi.org/10.1016/j.healthpol.2006.09.010

Citazione non strutturata

Tricco A.C., Lillie E., Zarin W., O’Brien K., Colquhoun H., Kastner M., et al. (2018). A scoping review on the conduct and reporting of scoping reviews. BMC Med Res Methodol, 16:15.

https://doi.org/10.1186/s12874-016-0116-4

Citazione non strutturata

Tritter J. (2009). Revolution or Evolution: The challenges of Conceptualizing Patient and Public Involvement in a Consumerist World. Health Expectations, 12(3): 275-87.

https://doi.org/10.1111/j.1369-7625.2009.00564.x

Citazione non strutturata

Urbinati N. (2008). The Concept of Representation in Contemporary Democratic Theory. Annu. Rev. Polit. Sci., 11: 387-412.

https://doi.org/10.1146/annurev.polisci.11.053006.190533

Citazione non strutturata

Wharf Higgins J. (1999). Citizenship and empowerment: a remedy for citizens participation in health reform. Community Development Journal, 31(4): 287-307.

https://doi.org/10.1093/cdj/34.4.287

10.1080/14719037.2014.881537