Unstructured Zitierung

Abelson J., Forest P.G., Eyles J., Smith P., Martin E., Gauvin F.P. (2003). Deliberations about deliberative methods: issues in the design and evaluation of public participation process. Social Science and Medicine, 57: 239-251.

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10.1080/136455703200011961

Unstructured Zitierung

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Unstructured Zitierung

Baggott R., Forster R. (2008). Health consumer and patients’ organizations in Europe: towards a comparative analysis. Health Expectations, 11: 85-94.

https://doi.org/10.1111/j.1369-7625.2007.00472.x

Unstructured Zitierung

Barnes M., Coelho V.S. (2009). Social participation in health in Brazil and England. Health Expect, 12 (3): 226-36.

https://doi.org/10.1111/j.1369-7625.2009.00563.x

10.1111/1467-9299.0035

Unstructured Zitierung

Batista R., Moreira M. (2016). Relações entre representação e participação no Conselho Municipal de Saúde de Rio de Janeiro: segmento dos usuários, 2013-2014. Ciências & Saúde Coletiva, 21(5): 1409-20.

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Unstructured Zitierung

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Unstructured Zitierung

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Unstructured Zitierung

Blondiaux L., Sintomer Y. (2002). L’impératif délibératif. Politix, 15(57): 17-35.

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10.1080/14494035.2018.1511193

Unstructured Zitierung

Boivin A., L’Espérance A., Gauvin F.P., Dumez V., Macaulay A.C., Lehoux P., Abelson J. (2018). Patient and public engagement in research and health system decision making: A systematic review of evaluation tools. Health Expectations; 21: 1075–1084.

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10.1111/1468-0009.1206

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Botes L., Van Rensberg, D. (2000). Community participation in development: nine plagues and twelve commandments. Community Development Journal, 35(1): 41-58.

https://doi.org/10.1093/cdj/35.1.41

Unstructured Zitierung

Bovenkamp H.M., Trappenburg M.J., Grit K.J. (2009). Patient Participation in collective healthcare decision making: the Dutch model. Health Expectation; 13(1): 73-85.

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Unstructured Zitierung

Chambers S. (2018). The philosophic origins of deliberative ideals. In: Bächtiger A., Dryzeck J., Mansbridge J., Warren M.E., a cura di, The Oxford Handbook of Deliberative Democracy. Oxford: Ofxord University Press.

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Unstructured Zitierung

Conklin A., Morris Z., Nolte E. (2012). What is the evidence base for public involvement in health-care policy? Results of a systematic scoping review. Health Expectations 18(2): 153-165.

https://doi.org/10.1111/hex.12038

Unstructured Zitierung

Contandriopoulos D. (2004). Sociological perspective on public participation in health care. Social Science & Medicine, 58: 321-330.

https://doi.org/10.1016/S0277-9536(03)00164-3

Unstructured Zitierung

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Unstructured Zitierung

Crawford M.J., Rutter D., Manley C., Weaver T., Bhui K., Fulop N., Tyrer P. (2002). Systematic review of involving patients in the planning and development of health care. British Medical Journal, 325 30 november. -- Testo disponibile in pdf: https://www.bmj.com/content/bmj/325/7375/1263.full.pdf

https://doi.org/10.1136/bmj.325.7375.1263

Unstructured Zitierung

Crouch C. (1999). La ampliación de la ciudadanía social y económica y la participación. In: García S., Steven, L., a cura di, Ciudadanía, justicia social, identidad y participación. Madrid: Siglo Veintiuno.

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De Freitas C., Martin G. (2015). Inclusive public participation in health: Policy, practice and theoretical contributions to promote the involvement of marginalised groups in healthcare. Social Science & Medicine, 135: 31-39.

https://doi.org/10.1016/j.socscimed.2015.04.019

Unstructured Zitierung

Elwood P., Longley M. (2010). My Health: Whose responsibility? A jury decides. Journal of Epidemiology and Community Health, 64(9): 761-64.

https://doi.org/10.1136/jech.2009.087767

Unstructured Zitierung

Entwistle V. (2009). Public involvement in health service governance and development: questions of potential for influence. Health Expectations, 2009, 12: 1-3.

https://doi.org/10.1111/j.1369-7625.2009.00539.x

Unstructured Zitierung

Font J., Blanco I. (2007). Procedural legitimacy and political trust: The case of citizen juries in Spain. European Journal of Political Research, 46: 557-589.

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Frankish J. C, Kwan B., Ratner P., Warf Higgins J., Larsen C. (2002). Challenges of citizen participation in regional health authorities. Social Science and Medicine 2002, 54: 1471-80.

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Unstructured Zitierung

Fredriksson M., Tritter J. (2017). Disentangling patient and public involvement in healthcare decisions: why the difference matters. Sociology of Health & Illness, 39(1): 95-111

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Fung A. (2015). Putting the Public Back into Governance: The Challenges of Citizen Participation and Its Future. Public Administration Review, 75(4): 513-522.

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Unstructured Zitierung

Fung A., Wright E.O. (2001). Deepening Democracy: Innovations in Empowered Participatory Governance. Politics Society, 29: 5-41.

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Unstructured Zitierung

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Unstructured Zitierung

Habermas J. (1992). Further reflections on the Public Sphere. In: Calhoun C., a cura di, Habermas and the Public Sphere. Cambridge: The MIT Press.

Unstructured Zitierung

Hall A.E., Bryant J., Sanson-Fisher R.W., Fradgley E.A., Proietto A.M., Roos I. (2018). Consumer input into health care: Time for a new active and comprehensive model of consumer involvement. Health Expect., 21: 707–713.

https://doi.org/10.1111/hex.12665

10.1111/1467-9515.0008

Unstructured Zitierung

Kashefi E., Mort M. (2004). Grounded citizens’ juries: a tool for health activism?, Health Expectations, 7: 290-302.

https://doi.org/10.1111/j.1369-7625.2004.00295.x

Unstructured Zitierung

Kondilis B., Kiriaze I., Athanasoulia A., Falagas M. (2008). Mapping Health Literacy Research in the European Union: A Bibliometric Analysis. PLOS ONE, 3(6): 1-6.

https://doi.org/10.1371/journal.pone.0002519

Unstructured Zitierung

Lander J, Langhof H, Dierks M.L. (2019). Involving patients and the public in medical and health care research studies: An exploratory survey on participant recruiting and representativeness from the perspective of study authors. PLOS ONE, 14(1): e0204187.

https://doi.org/10.1371/journal.pone.0204187

Unstructured Zitierung

Lehoux P., Daudelin G., DemersPayette O., Boivin A. (2009). Fostering deliberations about health innovation: What do we want to know from publics?. Social Science & Medicine, 68: 2002-09.

https://doi.org/10.1016/j.socscimed.2009.03.017

Unstructured Zitierung

Li K., Abelson J., Giacomini M., Contandriopoulos D. (2015). Conceptualizing the use of public involvement in health policy decision-making, Social Science & Medicine, 138:14-21.

https://doi.org/10.1016/j.socscimed.2015.05.023

10.1177/13558196970020020

10.1590/S0102-6445200700010000

Unstructured Zitierung

Martin G. (2008). Representativeness, legitimacy and power in public involvement in health-service management. Social Science & Medicine, 67: 1757-65.

https://doi.org/10.1016/j.socscimed.2008.09.024

Unstructured Zitierung

Martin G. (2008). Ordinary people only’: knowledge, representativeness, and the publics of public participation in healthcare. Sociology of Health & Illness, 30(1): 35-54.

https://doi.org/10.1111/j.1467-9566.2007.01027.x

Unstructured Zitierung

Mitton C., Smith N., Peacock S., Evoy B., Abelson J. (2009). Public participation in health care priority setting: A scoping review. Health Policy, 91: 219-228.

https://doi.org/10.1016/j.healthpol.2009.01.005

Unstructured Zitierung

Mockford C., Staniszewska S., Griffiths F., Herron-Marx S. (2012). The impact of patient and public involvement on UK NHS health care: a systematic review. Int. J. Qual. Health Care, 24: 28-38.

https://doi.org/10.1093/intqhc/mzr066

Unstructured Zitierung

Montesanti S., Abelson J., Lavis J., Dunn J. (2016). Enabling the participation of marginalized populations: case studies from a health service organization in Ontario, Canada. Health Promot Int, 32(4): 636-649.

https://doi.org/10.1093/heapro/dav118

Unstructured Zitierung

Morrison C., Dearden A., (2013). Beyond tokenistic participation: Using representational artefacts to enable meaningful public participation in health service. Health Policy, 112: 179-186.

https://doi.org/10.1016/j.healthpol.2013.05.008

Unstructured Zitierung

Parkinson J., (2004). Hearing voices: negotiating representation claims in public deliberation. Br J Polit & Int Relations, 6(3): 370-388.

https://doi.org/10.1111/j.1467-856X.2004.00145.x

Unstructured Zitierung

Pateman C. (1970). Participation and democratic theory. Cambridge: Cambridge University Press.

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10.1017/S1537592711004877

Unstructured Zitierung

Pitkin H.F. (1967). The Concept of Representation. Berkeley: University of California Press.

https://doi.org/10.1525/9780520340503

Unstructured Zitierung

Pizzo E., Doyle, C., Matthews R. Barlow J. (2014). Patient and Public Involvement: how much we spend and what are the benefit? Health Expectations, 18: 1918-1926.

https://doi.org/10.1111/hex.12204

Unstructured Zitierung

Rojatz D., Forster R. (2017). Self-help organisations as patient representatives in health care and policy decision-making. Health Policy, 121(1): 1047-1052.

https://doi.org/10.1016/j.healthpol.2017.08.012

Unstructured Zitierung

Santos B.S. (2005). Democratizing democracy: beyond the liberal democratic canon. London: Verso.

Unstructured Zitierung

Serapioni M. (2002). Forme innovative di partecipazione dei cittaseradini alla valutazione di qualità: Citizens’ Juries e Comitati Consultivi Misti. In: Cipolla C., Giarelli G., Altieri L., a cura di, Valutare la qualità in sanità. Approcci, metodologie e strumenti. Milano: FrancoAngeli.

10.1590/1413-812320141912.0229201

Unstructured Zitierung

Serapioni M. (2014b). Saúde, participação e abordagens deliberativas. Potencialidades e limites dos júris de cidadãos. Fórum Sociológico, 24: 95-103.

https://doi.org/10.4000/sociologico.1101

10.1590/S0102-311X200600110001

Unstructured Zitierung

Smith, G., Mattew R. (2014). Defining Mini-public: Making Sense of Existing Conceptions. In: Grönlund K., Bächtiger A., Setälä M., a cura di, Deliberative mini-public. Involving Citizens in the Democratic Process. Colchester: European Consortium for Political Research.

Unstructured Zitierung

Street J., Duszynski K., Krawczyk S., Braunack-Mayer A. (2014). The use of citizens’ juries in health policy decision-making: a systematic review. Social Science & Medicine, 109: 1-9.

https://doi.org/10.1016/j.socscimed.2014.03.005

Unstructured Zitierung

Tambuyzer E., Pieters G., Van Audenhove C. (2014). Patient involvement in mental health care: one size does not fit all. Health Expect, 17(1): 138-50.

https://doi.org/10.1111/j.1369-7625.2011.00743.x

Unstructured Zitierung

Thurston W., MacKean G., Vollman A., Casebber A., Weber M., Malof B., Bader J. (2005). Public participation in regional health policy: a theoretical framework. Health Policy, 73: 237-252.

https://doi.org/10.1016/j.healthpol.2004.11.013

Unstructured Zitierung

Timotijevic L., Raats, M.M. (2007). Evaluation of two methods of deliberative participation of older people in food-policy development. Health Policy, 82: 302-319.

https://doi.org/10.1016/j.healthpol.2006.09.010

Unstructured Zitierung

Tricco A.C., Lillie E., Zarin W., O’Brien K., Colquhoun H., Kastner M., et al. (2018). A scoping review on the conduct and reporting of scoping reviews. BMC Med Res Methodol, 16:15.

https://doi.org/10.1186/s12874-016-0116-4

Unstructured Zitierung

Tritter J. (2009). Revolution or Evolution: The challenges of Conceptualizing Patient and Public Involvement in a Consumerist World. Health Expectations, 12(3): 275-87.

https://doi.org/10.1111/j.1369-7625.2009.00564.x

Unstructured Zitierung

Urbinati N. (2008). The Concept of Representation in Contemporary Democratic Theory. Annu. Rev. Polit. Sci., 11: 387-412.

https://doi.org/10.1146/annurev.polisci.11.053006.190533

Unstructured Zitierung

Wharf Higgins J. (1999). Citizenship and empowerment: a remedy for citizens participation in health reform. Community Development Journal, 31(4): 287-307.

https://doi.org/10.1093/cdj/34.4.287

10.1080/14719037.2014.881537