DIESE DOI-METADATEN WURDEN ZULETZT AKTUALISIERT AM: 2024-01-10 23:01
Vollständiger Titel
SOCIOLOGIA DELLA COMUNICAZIONE
Verlag
FrancoAngeli
ISSN
1121-1733 (Gedruckte Zeitschrift)
1972-4926 (Online-Zeitschrift)
Nummer der Ausgabe
55
Andere Beschreibung der Ausgabe
55
Erscheinungsdatum der Ausgabe (YYYY/MM)
2018/09
Vollständiger Titel
Le malattie rare: informazione e comunicazione nel patient journey
Von (Autor)
Erste Seite
30
Letzte Seite
47
Sprache des Textes
Italienisch
Erscheinungsdatum
2018/09
Copyright
2018 FrancoAngeli srl
Unstructured Zitierung
Agarwal AK, Murinson BB. (2012), New dimensions in patient-physician interaction: values, autonomy, and medical information in the patient-centered clinical encounter, «Rambam Maimonides Medical Journal», 3(3),
Unstructured Zitierung
Albanesi C. (2004), I focus group, Carocci, Roma.
Unstructured Zitierung
AlGhamdi K.M., Moussa A.A. (2012), Internet use by the public to search for health-related information, in «International Journal of Medical Informatics», 8 (1): 363-373.
Unstructured Zitierung
Andersen K.M., Medaglia R., Henriksen H.Z. (2012), Social media in public health care: Impact domain propositions, in «Government Information Quarterly», 29 (4): 462-469,
Unstructured Zitierung
Ardigo A. (1997), Società e salute. Lineamenti di sociologia sanitaria, FrancoAngeli, Milano.
Unstructured Zitierung
Augè M., Herzlich C. (a cura di) (1986), Il senso del male. Antropologia, storia e sociologia della malattia, Il Saggiatore, Milano.
Unstructured Zitierung
Doyle M. (2015), Peer Support and Mentorship in a US Rare Disease Community: Findings from the Cystinosis in Emerging Adulthood Study, in «Patient», 8 (1): 65-73,
Unstructured Zitierung
Du Pré A. (2014), Communicating about health: current issues and perspectives, Oxford University Press, Oxford.
Unstructured Zitierung
Dutta-Bergeman M.J. (2004), The Impact of Completeness and Web Use Motivation on the Credibility of e-Health Information, in «the Journal of Communication», 54 (2): 253-269,
Unstructured Zitierung
Frisina A. (2010), Focus group, il Mulino, Bologna.
Unstructured Zitierung
Griffith G.M., Hastings R.P., Nash S., Petalas M., Oliver C., Howlin P., Moss J., Petty J., Tunnicliffe P. (2011), You have to sit and explain it all, and explain yourself. Mothers’ experiences of support services for their offspring with a rare genetic intellectual disability syndrome, in «Journal of Genetic Counseling», 20(2):165-77,
Unstructured Zitierung
Groft S.C., de la Paz M.P. (2010), Rare diseases. Avoiding misperceptions and establishing realities: the need for reliable epidemiological data, in «Advances in Experimental Medicine and Biology», 686:3-1 , ISSN: 0065-2598.
Unstructured Zitierung
Hesselgrave B.L. (2003), Helping to manage the high cost of rare diseases, «Managed Care Quarterly»,11(1):1-6.
Unstructured Zitierung
Hilton-Kamm D., Sklansky M., Chang R.K. (2014), How not to tell parents about their child’s new diagnosis of congenital heart disease: an Internet survey of 841 parents, in «Pediatric Cardiology», 35(2):239-52,
Unstructured Zitierung
Huyard C. (2009), What, if anything, is specific about having a rare disorder? Patients’ judgements on being ill and being rare, in «Health Expectations», 12(4):361-70,
Unstructured Zitierung
Jhaveri K.D., Schrier P.B., Mattana J. (2013), Paging Doctor Google!, in «Heuristics vs. technology», 2:90,
Unstructured Zitierung
Kowalski C., Kahana E., Kuhr K., Ansmann L., Pfaff H. (2014), Changes over time in the utilization of disease-related Internet information in newly diagnosed breast cancer patients 2007 to 2013, in «Journal of Medical Internet Research», 16(8),
Unstructured Zitierung
Kreps G.L., Thornton B.C. (1984), Health Communication. Theory and Practice, Longman Inc., New York.
Unstructured Zitierung
Liuccio M., Belotti R., Comune A., Zambito V., Schulz P. (2015), Communication in rare diseases: A literature review, in «Journal of communications research», 7: 215-225, ISSN: 1935-3537.
Unstructured Zitierung
Morgan T, Schmidt J, Haakonsen C., Lewis J., Della Rocca M., Morrison S., Biesecker B., Kaphingst K.A. (2014), Using the Internet to seek information about genetic and rare diseases: a case study comparing data from 2006 and 2011, in «JMIR Research Protocol», 3(1):e10,
Unstructured Zitierung
Polich G.R. (2012), Rare disease patient groups as clinical researchers, in «Drug Discovery Today», 17(3-4):167-72,
Unstructured Zitierung
Schumacher K.R., Stringer K.A., Donohue J.E., Yu S., Shaver A., Caruthers R.L., Zikmund-Fisher B.J., Fifer C., Goldberg C., Russell M.W. (2014), Social media methods for studying rare diseases, in «Pediatrics», 133(5):e1345-53,
Unstructured Zitierung
Sundar S.S., Rice R.E., Kim H.S., Sciamanna C.N. (2011), Online health information: Conceptual challenges and theoretical opportunities in Thompson T.L., Parrot R., Nussbaum J.F. (eds.) The Routledge Handbook of Health Communication, Routledge, New York, pp. 181-202.
Unstructured Zitierung
Thompson T.L., Parrot R., Nussbaum J.F. (2011), The Routledge Handbook of Health Communication, Routledge, New York.
Unstructured Zitierung
Wicks P., Massagli M., Frost J., Brownstein C., Okun S., Vaughan T., Bradley R., Heywood J. (2010), Sharing health data for better outcomes on PatientsLikeMe, in «J Med Internet Res.» , 12(2):e19,
Unstructured Zitierung
Zanni G.R.(2012), Locating useful patient brochures and handouts, in «Consult Pharm.» 27(5):366-70,