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10.3280/SC2018-055003

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Reference list of 10.3280/SC2018-055003

Unstructured Citation

Agarwal AK, Murinson BB. (2012), New dimensions in patient-physician interaction: values, autonomy, and medical information in the patient-centered clinical encounter, «Rambam Maimonides Medical Journal», 3(3),

Unstructured Citation

Albanesi C. (2004), I focus group, Carocci, Roma.

Unstructured Citation

AlGhamdi K.M., Moussa A.A. (2012), Internet use by the public to search for health-related information, in «International Journal of Medical Informatics», 8 (1): 363-373.

Unstructured Citation

Andersen K.M., Medaglia R., Henriksen H.Z. (2012), Social media in public health care: Impact domain propositions, in «Government Information Quarterly», 29 (4): 462-469,

Unstructured Citation

Ardigo A. (1997), Società e salute. Lineamenti di sociologia sanitaria, FrancoAngeli, Milano.

Unstructured Citation

Augè M., Herzlich C. (a cura di) (1986), Il senso del male. Antropologia, storia e sociologia della malattia, Il Saggiatore, Milano.

Unstructured Citation

Doyle M. (2015), Peer Support and Mentorship in a US Rare Disease Community: Findings from the Cystinosis in Emerging Adulthood Study, in «Patient», 8 (1): 65-73,

Unstructured Citation

Du Pré A. (2014), Communicating about health: current issues and perspectives, Oxford University Press, Oxford.

Unstructured Citation

Dutta-Bergeman M.J. (2004), The Impact of Completeness and Web Use Motivation on the Credibility of e-Health Information, in «the Journal of Communication», 54 (2): 253-269,

Unstructured Citation

Frisina A. (2010), Focus group, il Mulino, Bologna.

Unstructured Citation

Griffith G.M., Hastings R.P., Nash S., Petalas M., Oliver C., Howlin P., Moss J., Petty J., Tunnicliffe P. (2011), You have to sit and explain it all, and explain yourself. Mothers’ experiences of support services for their offspring with a rare genetic intellectual disability syndrome, in «Journal of Genetic Counseling», 20(2):165-77,

Unstructured Citation

Groft S.C., de la Paz M.P. (2010), Rare diseases. Avoiding misperceptions and establishing realities: the need for reliable epidemiological data, in «Advances in Experimental Medicine and Biology», 686:3-1 , ISSN: 0065-2598.

Unstructured Citation

Hesselgrave B.L. (2003), Helping to manage the high cost of rare diseases, «Managed Care Quarterly»,11(1):1-6.

Unstructured Citation

Hilton-Kamm D., Sklansky M., Chang R.K. (2014), How not to tell parents about their child’s new diagnosis of congenital heart disease: an Internet survey of 841 parents, in «Pediatric Cardiology», 35(2):239-52,

Unstructured Citation

Huyard C. (2009), What, if anything, is specific about having a rare disorder? Patients’ judgements on being ill and being rare, in «Health Expectations», 12(4):361-70,

Unstructured Citation

Jhaveri K.D., Schrier P.B., Mattana J. (2013), Paging Doctor Google!, in «Heuristics vs. technology», 2:90,

Unstructured Citation

Kowalski C., Kahana E., Kuhr K., Ansmann L., Pfaff H. (2014), Changes over time in the utilization of disease-related Internet information in newly diagnosed breast cancer patients 2007 to 2013, in «Journal of Medical Internet Research», 16(8),

Unstructured Citation

Kreps G.L., Thornton B.C. (1984), Health Communication. Theory and Practice, Longman Inc., New York.

Unstructured Citation

Liuccio M., Belotti R., Comune A., Zambito V., Schulz P. (2015), Communication in rare diseases: A literature review, in «Journal of communications research», 7: 215-225, ISSN: 1935-3537.

Unstructured Citation

Morgan T, Schmidt J, Haakonsen C., Lewis J., Della Rocca M., Morrison S., Biesecker B., Kaphingst K.A. (2014), Using the Internet to seek information about genetic and rare diseases: a case study comparing data from 2006 and 2011, in «JMIR Research Protocol», 3(1):e10,

Unstructured Citation

Polich G.R. (2012), Rare disease patient groups as clinical researchers, in «Drug Discovery Today», 17(3-4):167-72,

Unstructured Citation

Schumacher K.R., Stringer K.A., Donohue J.E., Yu S., Shaver A., Caruthers R.L., Zikmund-Fisher B.J., Fifer C., Goldberg C., Russell M.W. (2014), Social media methods for studying rare diseases, in «Pediatrics», 133(5):e1345-53,

Unstructured Citation

Sundar S.S., Rice R.E., Kim H.S., Sciamanna C.N. (2011), Online health information: Conceptual challenges and theoretical opportunities in Thompson T.L., Parrot R., Nussbaum J.F. (eds.) The Routledge Handbook of Health Communication, Routledge, New York, pp. 181-202.

Unstructured Citation

Thompson T.L., Parrot R., Nussbaum J.F. (2011), The Routledge Handbook of Health Communication, Routledge, New York.

Unstructured Citation

Wicks P., Massagli M., Frost J., Brownstein C., Okun S., Vaughan T., Bradley R., Heywood J. (2010), Sharing health data for better outcomes on PatientsLikeMe, in «J Med Internet Res.» , 12(2):e19,

Unstructured Citation

Zanni G.R.(2012), Locating useful patient brochures and handouts, in «Consult Pharm.» 27(5):366-70,